LEARN ABOUT MARISOL'S STORY

Alex hope pic.jpg

Alexandria, Marisol's daughter, shortly after her recovery from what was thought to be terminal brain cancer.

Some Articles of Interest for Caregivers, the Disabled Community, and Advocates

  1. Chronic psychosocial and financial burden accelerates 5-year telomere shortening: Findings from the Coronary Artery Risk Development in Young Adults Study (May 25, 2020). Cabeza de Baca T, Prather AA, Lin J, et al. Mol Psychiatry. 2020;25(5):1141-1153. doi:10.1038/s41380-019-0482-5. (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7044034/)

  2. Relative to National Caregivers Day (ACR 176, Reyes) - "In 2017, throughout California, 4,450,000 caregivers provided more than 4.1 billion hours of care for an estimated total economic value of $57.7 billion". (http://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=201920200ACR176)

  3. The Stress of Family Caregiving: Your Health May Be at Risk (PDF) (caregiveraction.org) (http://www.caregiveraction.org/_doc/pdf/CaregiverStress.pdf#:~:text=It%20is%20now%20recognized%20that%20the%20stress%20of,our%20immune%20system%20and%2C%20consequently%2C%20our%20overall%20health.)

  4. Thirty Percent of Caregivers Die Before The People They Care for Do - "Rough statistics show that 30% of caregivers die before those they are caring for. Some studies show deaths higher. Illness that doesn't lead to death is rampant, as well - depression and auto-immune diseases are high on the list. Caregivers often don't find time to go to their own doctor appointments (2007)."  (https://www.agingcare.com/Discussions/Thirty-Percent-of-Caregivers-Die-Before-The-People-They-Care-For-Do-97626.htm)

  5. New Survey: Millions of Family Caregivers Go Without Needed Health Care, Have Problems Paying Medical Bills - Informal Family Caregivers More Likely than Others to Miss Work, Suffer from Chronic Illness, and Lack Health Insurance Coverage (2005). (https://www.commonwealthfund.org/press-release/2005/new-survey-millions-family-caregivers-go-without-needed-health-care-have#:~:text=In%20fact%2C%20caregivers%20reported%20chronic,according%20to%20the%20study%20authors)

Other Media Sources

Susan Tom of Fairfield, CA, is not a typical single mother -- Tom is the head of a family of 11 adopted children, all of whom are physically challenged or living with long-term illnesses. Tom and her special family are the subject of My Flesh and Blood, a documentary which examines the dynamic of this household, as well as the often demanding physical and emotional needs of the 11 kids and the heavy emotional burden Tom must sometimes carry as she looks after children who may not survive to adulthood.—MediaGod (My Flesh and Blood (2003) - Plot Summary - IMDb)

Over the last three decades, science has been advancing our understanding of stress how it impacts our bodies and how our social standing can make us more or less susceptible. While the entire documentary is relevant, feel free to jump to 17:56 for the topic of caregiver stress specifically.

For the full video, you can go to: https://youtu.be/eYG0ZuTv5rs

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